Architect Sarah in gruelling charity challenge
Published on: 31st August 2017
Our principal Architect, Sarah Johnson, is currently spending much of her spare time training for a 300-mile hike from Central London to Lizard Point to raise money for the Motor Neurone Disease Association.
Sarah is part of the inspiring 2Fingers2MND team, which has so far raised more than £65,000 for the charity, which funds and promotes global research into the disease. It also provides support and care for people with MND, their families and carers.
She's organised the walk in honour of her friend, Dave Greaves, who was diagnosed with ALS Motor Neurone Disease in June 2015, a month after his 30th birthday.
The course of the disease was swift and cruel. Within five months, Dave was unable to use his hands; after nine months, he'd lost the ability to walk. He died in September 2016, a week after his first wedding anniversary and 15 months after being diagnosed.
Sarah said: "Dave showed incredible strength and continued to live life to the maximum.
"He achieved an incredible amount in the short period following his diagnosis: he married the amazing Philippa, published a book, and climbed Mount Kilimanjaro to 4,600m, raising thousands to fund research into MND, and travelled to Africa, visiting charity projects and providing funding for local schoolchildren.
"Simply put, Dave and Philippa are nothing short of awe-inspiring."
MND is a progressive neurodegenerative condition affecting the relaying of messaging from the brain to the muscles, eventually leading to paralysis and a dramatically curtailed life expectancy. At present, there's no treatment or cure.
Sarah's setting off from Central London on September 17, walking down to the Surrey Hills, across the South Downs, through the New Forest and Dorset AONB, before heading across Dartmoor and briefly along the South Devon Coast path into Cornwall.
Sarah added: "Dave the Ironman would have more than likely run this route. However, I can only attempt to crawl it over a period of two weeks.
"The purpose of the walk is to raise as much as we can for MNDA, push myself personally - I rarely do any kind of exercise - and enjoy the scenery, whilst honouring Dave, who I'm sure will be with us all the way.
Visit Sarah's JustGiving page: https://www.justgiving.com/fundraising/Sarah-Gibbons10.